Publications
2025
The Use of Digital Devices to Monitor Physical Behavior in Motor Neuron Disease: Systematic Review.
Musson, L. S., Mitic, N., Leigh-Valero, V., Onambele-Pearson, G., Knox, L., Steyn, F. J., . . . Hodson-Tole, E. (2025). The Use of Digital Devices to Monitor Physical Behavior in Motor Neuron Disease: Systematic Review.. Journal of medical Internet research, 27, e68479. doi:10.2196/68479
2024
The Use of Digital Devices to Monitor Physical Behavior in Motor Neuron Disease: Systematic Review (Preprint)
Development of the Guide to Disseminating Research (GuiDiR): A consolidated framework.
Scott, S., Atkins, B., D'Costa, T., Rendle, C., Murphy, K., Taylor, D., . . . Bhattacharya, D. (2024). Development of the Guide to Disseminating Research (GuiDiR): A consolidated framework.. Research in social & administrative pharmacy : RSAP, 20(11), 1047-1057. doi:10.1016/j.sapharm.2024.08.001
Development and Evaluation of the Telehealth in Motor Neuron Disease System: The TIME Study Protocol.
Knox, L., Coates, E., Griffiths, A., Ali, Y., Hobson, E., & McDermott, C. (2024). Development and Evaluation of the Telehealth in Motor Neuron Disease System: The TIME Study Protocol.. JMIR research protocols, 13, e57685. doi:10.2196/57685
Development and Evaluation of the Telehealth in Motor Neuron Disease System: The TIME Study Protocol (Preprint)
Researchers' experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design.
Surr, C., Marsden, L., Griffiths, A., Cox, S., Fossey, J., Martin, A., . . . Walwyn, R. (2024). Researchers' experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design.. PloS one, 19(2), e0297184. doi:10.1371/journal.pone.0297184
2023
Protocol of the process evaluation of cluster randomised control trial for estimating the effectiveness and cost-effectiveness of a complex intervention to increase care home staff influenza vaccination rates compared to usual practice (FluCare)
Birt, L., Katangwe-Chigamba, T., Scott, S., Wright, D. J., Wagner, A. P., Sims, E., . . . Patel, A. (2023). Protocol of the process evaluation of cluster randomised control trial for estimating the effectiveness and cost-effectiveness of a complex intervention to increase care home staff influenza vaccination rates compared to usual practice (FluCare). TRIALS, 24(1). doi:10.1186/s13063-023-07613-5
Dementia care navigation: A systematic review on different service types and their prevalence
Giebel, C., Reilly, S., Gabbay, M., Dickinson, J., Tetlow, H., Hogan, H., . . . Cooper, C. (2023). Dementia care navigation: A systematic review on different service types and their prevalence. International Journal of Geriatric Psychiatry.
Cancer care for people with dementia: Literature overview and recommendations for practice and research
Ashley, L., Surr, C., Kelley, R., Price, M., Griffiths, A. W., Fowler, N. R., . . . Wyld, L. (2023). Cancer care for people with dementia: Literature overview and recommendations for practice and research. CA-A CANCER JOURNAL FOR CLINICIANS, 73(3), 320-338. doi:10.3322/caac.21767
Bridging the gap between science and care: a qualitative exploration of the role of the Scientific Linking Pin researcher working in research and practice partnerships
Everink, I., Urlings, J., Griffiths, A., Verbeek, H., Haunch, K., Spilsbury, K., . . . Devi, R. (n.d.). Bridging the gap between science and care: a qualitative exploration of the role of the Scientific Linking Pin researcher working in research and practice partnerships. Journal of Long-Term Care. doi:10.31389/jltc.212
2022
Cluster randomised control trial protocol for estimating the effectiveness and cost-effectiveness of a complex intervention to increase care home staff influenza vaccination rates compared to usual practice (FLUCARE).
Patel, A., Sims, E., Blacklock, J., Birt, L., Bion, V., Clark, A., . . . Wright, D. (2022). Cluster randomised control trial protocol for estimating the effectiveness and cost-effectiveness of a complex intervention to increase care home staff influenza vaccination rates compared to usual practice (FLUCARE).. Trials, 23(1), 989. doi:10.1186/s13063-022-06925-2
Characteristics and general practice resource use of people with comorbid cancer and dementia in England: a retrospective cross-sectional study.
Collinson, M., Mason, E., Kelley, R., Griffiths, A., Ashley, L., Henry, A., . . . Surr, C. (2022). Characteristics and general practice resource use of people with comorbid cancer and dementia in England: a retrospective cross-sectional study.. BMC primary care, 23(1), 281. doi:10.1186/s12875-022-01882-w
A qualitative exploration of the clinical presentation, trajectory, management and recovery of COVID-19 in older people: Learning from frontline staff experiences
Devi, R., Daffu-O'Reilly, A., Haunch, K., Griffiths, A., Jones, L., Meyer, J., & Spilsbury, K. (2022). A qualitative exploration of the clinical presentation, trajectory, management and recovery of COVID-19 in older people: Learning from frontline staff experiences. HEALTH & SOCIAL CARE IN THE COMMUNITY, 30(6), E5223-E5233. doi:10.1111/hsc.13941
Effectiveness of counselling and psychotherapeutic interventions for people with dementia and their families: a systematic review
Shoesmith, E., Griffiths, A. W., Sass, C., & Charura, D. (2022). Effectiveness of counselling and psychotherapeutic interventions for people with dementia and their families: a systematic review. AGEING & SOCIETY, 42(4), 962-989. doi:10.1017/S0144686X2000135X
Delivering effective counselling for people with dementia and their families: Opportunities and challenges
Sass, C., Griffiths, A. W., Shoesmith, E., Charura, D., & Nicholson, P. (2022). Delivering effective counselling for people with dementia and their families: Opportunities and challenges. COUNSELLING & PSYCHOTHERAPY RESEARCH, 22(1), 175-186. doi:10.1002/capr.12421
Measuring adolescent attitudes towards dementia: The revalidation and refinement of the A-ADS
Farina, N., Griffiths, A. W., Hughes, L. J., & Parveen, S. (2022). Measuring adolescent attitudes towards dementia: The revalidation and refinement of the A-ADS. JOURNAL OF HEALTH PSYCHOLOGY, 27(2), 374-385. doi:10.1177/1359105320953479
2021
Balancing the needs of individuals and services in cancer treatment for people with dementia: A focused ethnographic study
Griffiths, A. W., Ashley, L., Kelley, R., Cowdell, F., Collinson, M., Mason, E., . . . Surr, C. (2021). Balancing the needs of individuals and services in cancer treatment for people with dementia: A focused ethnographic study. INTERNATIONAL JOURNAL OF NURSING STUDIES, 121. doi:10.1016/j.ijnurstu.2021.104006
Maintaining and improving mouth care for care home residents: A participatory research project
Griffiths, A. W., Devi, R., Cheetham, B., Heaton, L., Randle, A., Ellwood, A., . . . Spilsbury, K. (2021). Maintaining and improving mouth care for care home residents: A participatory research project. INTERNATIONAL JOURNAL OF OLDER PEOPLE NURSING, 16(5). doi:10.1111/opn.12394
Effectiveness of Dementia Care Mapping™ to reduce agitation in care home residents with dementia: an open-cohort cluster randomised controlled trial
Surr, C. A., Holloway, I., Walwyn, R. E. A., Griffiths, A. W., Meads, D., Martin, A., . . . Farrin, A. J. (2021). Effectiveness of Dementia Care Mapping™ to reduce agitation in care home residents with dementia: an open-cohort cluster randomised controlled trial. AGING & MENTAL HEALTH, 25(8), 1410-1423. doi:10.1080/13607863.2020.1745144
Relational counselling as a psychosocial intervention for dementia: Qualitative evidence from people living with dementia and family members
Griffiths, A. W., Shoesmith, E., Sass, C., Nicholson, P., & Charura, D. (2021). Relational counselling as a psychosocial intervention for dementia: Qualitative evidence from people living with dementia and family members. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 20(6), 2091-2108. doi:10.1177/1471301220984912
Navigating cancer treatment and care when living with comorbid dementia: an ethnographic study
Surr, C., Griffiths, A. W., Kelley, R., Ashley, L., Cowdell, F., Henry, A., . . . Farrin, A. (2021). Navigating cancer treatment and care when living with comorbid dementia: an ethnographic study. SUPPORTIVE CARE IN CANCER, 29(5), 2571-2579. doi:10.1007/s00520-020-05735-z
Safe Visiting is Essential for Nursing Home Residents During the COVID-19 Pandemic: An International Perspective
Low, L. -F., Hinsliff-Smith, K., Sinha, S. K., Stall, N. M., Verbeek, H., Siette, J., . . . Comas-Herrera, A. (2021). Safe Visiting is Essential for Nursing Home Residents During the COVID-19 Pandemic: An International Perspective. JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION, 22(5), 977-978. doi:10.1016/j.jamda.2021.02.020
SEeking AnsweRs for Care Homes during the COVID-19 pandemic (COVID SEARCH)
Spilsbury, K., Devi, R., Griffiths, A., Akrill, C., Astle, A., Goodman, C., . . . Thompson, C. (2021). SEeking AnsweRs for Care Homes during the COVID-19 pandemic (COVID SEARCH). AGE AND AGEING, 50(2), 335-340. doi:10.1093/ageing/afaa201
Staff experiences of implementing Dementia Care Mapping to improve the quality of dementia care in care homes: a qualitative process evaluation
Griffiths, A. W., Robinson, O. C., Shoesmith, E., Kelley, R., & Surr, C. A. (2021). Staff experiences of implementing Dementia Care Mapping to improve the quality of dementia care in care homes: a qualitative process evaluation. BMC HEALTH SERVICES RESEARCH, 21(1). doi:10.1186/s12913-021-06152-6
Understanding and identifying ways to improve hospital-based cancer care and treatment for people with dementia: an ethnographic study
Ashley, L., Kelley, R., Griffiths, A., Cowdell, F., Henry, A., Inman, H., . . . Surr, C. (2021). Understanding and identifying ways to improve hospital-based cancer care and treatment for people with dementia: an ethnographic study. AGE AND AGEING, 50(1), 233-241. doi:10.1093/ageing/afaa210
Collecting self-report research data with people with dementia within care home clinical trials: Benefits, challenges and best practice
Perfect, D., Griffiths, A. W., Da Silva, M. V., Dekker, N. L., McDermid, J., & Surr, C. A. (2021). Collecting self-report research data with people with dementia within care home clinical trials: Benefits, challenges and best practice. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 20(1), 148-160. doi:10.1177/1471301219871168
2020
A biopsychosocial interpretation of the Neuropsychiatric Inventory - Nursing Home assessment: reconceptualising psychiatric symptom attributions
Smith, S. J., Griffiths, A. W., Creese, B., Sass, C., & Surr, C. A. (2020). A biopsychosocial interpretation of the Neuropsychiatric Inventory - Nursing Home assessment: reconceptualising psychiatric symptom attributions. BJPSYCH OPEN, 6(6). doi:10.1192/bjo.2020.113
The development and validation of the adolescent level of contact with dementia scale
Parveen, S., Griffiths, A. W., & Farina, N. (2020). The development and validation of the adolescent level of contact with dementia scale. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 35(10), 1134-1140. doi:10.1002/gps.5335
Enabling people with dementia to access and receive cancer treatment and care: The crucial role of supportive networks
Surr, C. A., Kelley, R., Griffiths, A. W., Ashley, L., Cowdell, F., Henry, A., . . . Farrin, A. J. (2020). Enabling people with dementia to access and receive cancer treatment and care: The crucial role of supportive networks. JOURNAL OF GERIATRIC ONCOLOGY, 11(7), 1125-1131. doi:10.1016/j.jgo.2020.03.015
The influence of care home managers on the implementation of a complex intervention: findings from the process evaluation of a randomised controlled trial of dementia care mapping
Kelley, R., Griffiths, A. W., Shoesmith, E., McDermid, J., Couch, E., Robinson, O., . . . Surr, C. A. (2020). The influence of care home managers on the implementation of a complex intervention: findings from the process evaluation of a randomised controlled trial of dementia care mapping. BMC GERIATRICS, 20(1). doi:10.1186/s12877-020-01706-5
Decision-making in cancer care for people living with dementia
Griffiths, A. W., Ashley, L., Kelley, R., Cowdell, F., Collinson, M., Mason, E., . . . Surr, C. (2020). Decision-making in cancer care for people living with dementia. PSYCHO-ONCOLOGY, 29(8), 1347-1354. doi:10.1002/pon.5448
Evaluation of a dementia awareness programme in UK schools: a qualitative study
Farina, N., Hughes, L. J., Jones, E., Parveen, S., Griffiths, A. W., Galvin, K., & Banerjee, S. (2020). Evaluation of a dementia awareness programme in UK schools: a qualitative study. PUBLIC HEALTH, 185, 348-355. doi:10.1016/j.puhe.2020.05.050
What do adolescents perceive to be key features of an effective dementia education and awareness initiative?
Parveen, S., Farina, N., Shafiq, S., Hughes, L. J., & Griffiths, A. W. (2020). What do adolescents perceive to be key features of an effective dementia education and awareness initiative?. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 19(6), 1844-1854. doi:10.1177/1471301218807559
Adolescents' experiences and perceptions of dementia
Farina, N., Hughes, L. J., Griffiths, A. W., & Parveen, S. (2020). Adolescents' experiences and perceptions of dementia. AGING & MENTAL HEALTH, 24(7), 1175-1181. doi:10.1080/13607863.2019.1613343
The effect of a dementia awareness class on changing dementia attitudes in adolescents
Farina, N., Hughes, L. J., Jones, E., Parveen, S., Griffiths, A. W., Galvin, K., & Banerjee, S. (2020). The effect of a dementia awareness class on changing dementia attitudes in adolescents. BMC GERIATRICS, 20(1). doi:10.1186/s12877-020-01589-6
Profile of mild behavioral impairment and factor structure of the Mild Behavioral Impairment Checklist in cognitively normal older adults
Creese, B., Griffiths, A., Brooker, H., Corbett, A., Aarsland, D., Ballard, C., & Ismail, Z. (2020). Profile of mild behavioral impairment and factor structure of the Mild Behavioral Impairment Checklist in cognitively normal older adults. INTERNATIONAL PSYCHOGERIATRICS, 32(6), 705-717. doi:10.1017/S1041610219001200
Cost-Effectiveness of Dementia Care Mapping in Care-Home Settings: Evaluation of a Randomised Controlled Trial
Meads, D. M., Martin, A., Griffiths, A., Kelley, R., Creese, B., Robinson, L., . . . Surr, C. A. (2020). Cost-Effectiveness of Dementia Care Mapping in Care-Home Settings: Evaluation of a Randomised Controlled Trial. APPLIED HEALTH ECONOMICS AND HEALTH POLICY, 18(2), 237-247. doi:10.1007/s40258-019-00531-1
Perceptions and attitudes towards dementia among university students in Malaysia
Griffiths, A. W., Cheong, W. L., Saw, P. S., & Parveen, S. (2020). Perceptions and attitudes towards dementia among university students in Malaysia. BMC MEDICAL EDUCATION, 20(1). doi:10.1186/s12909-020-1972-5
Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes
Griffiths, A. W., Smith, S. J., Martin, A., Meads, D., Kelley, R., & Surr, C. A. (2020). Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes. QUALITY OF LIFE RESEARCH, 29(2), 463-472. doi:10.1007/s11136-019-02333-3
Validation of the Cohen-Mansfield Agitation Inventory Observational (CMAI-O) tool (vol 32, pg 75, 2020)
Griffiths, A. W., Albertyn, C. P., Burnley, N. L., Creese, B., Walwyn, R., Holloway, I., . . . Surr, C. A. (2020). Validation of the Cohen-Mansfield Agitation Inventory Observational (CMAI-O) tool (vol 32, pg 75, 2020). INTERNATIONAL PSYCHOGERIATRICS, 32(2), 287. doi:10.1017/S104161021900053X
Dementia Care Mapping™ to reduce agitation in care home residents with dementia: the EPIC cluster RCT
Surr, C. A., Holloway, I., Walwyn, R. E. A., Griffiths, A. W., Meads, D., Kelley, R., . . . Farrin, A. J. (2020). Dementia Care Mapping™ to reduce agitation in care home residents with dementia: the EPIC cluster RCT. HEALTH TECHNOLOGY ASSESSMENT, 24(16), 1-+. doi:10.3310/hta24160
Navigating meaningful involvement: Do the 'core principles for involving people with dementia in research' offer a useful framework?
Walsh, M., & Griffiths, A. W. (2020). Navigating meaningful involvement: Do the 'core principles for involving people with dementia in research' offer a useful framework?. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 19(1), 101-106. doi:10.1177/1471301219876714
Validation of the Cohen-Mansfield Agitation Inventory Observational (CMAI-O) tool
Griffiths, A. W., Albertyn, C. P., Burnley, N. L., Creese, B., Walwyn, R., Holloway, I., . . . Surr, C. A. (2020). Validation of the Cohen-Mansfield Agitation Inventory Observational (CMAI-O) tool. INTERNATIONAL PSYCHOGERIATRICS, 32(1), 75-85. doi:10.1017/S1041610219000279
2019
How Should We Capture Health State Utility in Dementia? Comparisons of DEMQOL-Proxy-U and of Self- and Proxy-Completed EQ-5D-5L
Martin, A., Meads, D., Griffiths, A. W., & Surr, C. A. (2019). How Should We Capture Health State Utility in Dementia? Comparisons of DEMQOL-Proxy-U and of Self- and Proxy-Completed EQ-5D-5L. VALUE IN HEALTH, 22(12), 1417-1426. doi:10.1016/j.jval.2019.07.002
Exploring the role of external experts in supporting staff to implement psychosocial interventions in care home settings: results from the process evaluation of a randomized controlled trial
Surr, C. A., Shoesmith, E., Griffiths, A. W., Kelley, R., McDermid, J., & Fossey, J. (2019). Exploring the role of external experts in supporting staff to implement psychosocial interventions in care home settings: results from the process evaluation of a randomized controlled trial. BMC HEALTH SERVICES RESEARCH, 19(1). doi:10.1186/s12913-019-4662-4
The development and use of the assessment of dementia awareness and person-centred care training tool in long-term care
Griffiths, A. W., Surr, C. A., Creese, B., Garrod, L., & Chenoweth, L. (2019). The development and use of the assessment of dementia awareness and person-centred care training tool in long-term care. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 18(7-8), 3059-3070. doi:10.1177/1471301218768165
Pro re nata prescribing and administration for neuropsychiatric symptoms and pain in long-term care residents with dementia and memory problems: a cross-sectional study
Griffiths, A. W., Surr, C. A., Alldred, D. P., Baker, J., Higham, R., Spilsbury, K., & Thompson, C. A. (2019). Pro re nata prescribing and administration for neuropsychiatric symptoms and pain in long-term care residents with dementia and memory problems: a cross-sectional study. INTERNATIONAL JOURNAL OF CLINICAL PHARMACY, 41(5), 1314-1322. doi:10.1007/s11096-019-00883-7
The Implementation of Dementia Care Mapping in a Randomized Controlled Trial in Long-Term Care: Results of a Process Evaluation
Surr, C. A., Griffiths, A. W., Kelley, R., Holloway, I., Walwyn, R. E. A., Martin, A., . . . Farrin, A. J. (2019). The Implementation of Dementia Care Mapping in a Randomized Controlled Trial in Long-Term Care: Results of a Process Evaluation. AMERICAN JOURNAL OF ALZHEIMERS DISEASE AND OTHER DEMENTIAS, 34(6), 390-398. doi:10.1177/1533317519845725
Barriers and facilitators to implementing dementia care mapping in care homes: results from the DCM EPIC trial process evaluation
Griffiths, A. W., Kelley, R., Garrod, L., Perfect, D., Robinson, O., Shoesmith, E., . . . Surr, C. A. (2019). Barriers and facilitators to implementing dementia care mapping in care homes: results from the DCM EPIC trial process evaluation. BMC GERIATRICS, 19. doi:10.1186/s12877-019-1045-y
2018
Development of the Adolescent Attitudes towards Dementia Scale (A-ADS)
Griffiths, A. W., Parveen, S., Shafiq, S., & Oyebode, J. R. (2018). Development of the Adolescent Attitudes towards Dementia Scale (A-ADS). INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 33(8), 1139-1145. doi:10.1002/gps.4907
Implementing Dementia Care Mapping as a practice development tool in dementia care services: a systematic review
Surr, C. A., Griffiths, A. W., & Kelley, R. (2018). Implementing Dementia Care Mapping as a practice development tool in dementia care services: a systematic review. CLINICAL INTERVENTIONS IN AGING, 13, 165-177. doi:10.2147/CIA.S138836
The prospective role of defeat and entrapment in caregiver burden and depression amongst formal caregivers
Griffiths, A. W., Wood, A. M., & Tai, S. (2018). The prospective role of defeat and entrapment in caregiver burden and depression amongst formal caregivers. PERSONALITY AND INDIVIDUAL DIFFERENCES, 120, 24-31. doi:10.1016/j.paid.2017.08.026
2016
Common sense to evidence-based practice
Griffiths, A., Parveen, S., & Gates, C. (2016). Common sense to evidence-based practice. Journal of Dementia Care, 24(5), 32.
Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping™ to enable person-centred care for people with dementia and their carers (DCM-EPIC) in care homes: study protocol for a randomised controlled trial
Surr, C. A., Walwyn, R. E. A., Lilley-Kelly, A., Cicero, R., Meads, D., Ballard, C., . . . Wallace, D. (2016). Evaluating the effectiveness and cost-effectiveness of Dementia Care Mapping™ to enable person-centred care for people with dementia and their carers (DCM-EPIC) in care homes: study protocol for a randomised controlled trial. TRIALS, 17. doi:10.1186/s13063-016-1416-z
2015
The Development of the Short Defeat and Entrapment Scale (SDES)
Griffiths, A. W., Wood, A. M., Maltby, J., Taylor, P. J., Panagioti, M., & Tai, S. (2015). The Development of the Short Defeat and Entrapment Scale (SDES). PSYCHOLOGICAL ASSESSMENT, 27(4), 1182-1194. doi:10.1037/pas0000110
Dementia detectives: Busting the myths
Parveen, S., Robins, J., Griffiths, A. W., & Oyebode, J. R. (2015). Dementia detectives: Busting the myths. Journal of Dementia Care, 23(4), 12-13.
The development of the Short Defeat and Entrapment Scale (SDES).
Griffiths, A. W., Wood, A. M., Maltby, J., Taylor, P. J., Panagioti, M., & Tai, S. (n.d.). The development of the Short Defeat and Entrapment Scale (SDES).. Psychological Assessment, 27(4), 1182-1194. doi:10.1037/pas0000110
2014
The prospective role of defeat and entrapment in depression and anxiety: A 12-month longitudinal study
Griffiths, A. W., Wood, A. M., Maltby, J., Taylor, P. J., & Tai, S. (2014). The prospective role of defeat and entrapment in depression and anxiety: A 12-month longitudinal study. PSYCHIATRY RESEARCH, 216(1), 52-59. doi:10.1016/j.psychres.2014.01.037