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2025

Uptake of Core Outcome Sets (COS) in China.

Qiu, R., Liu, S., Wang, W., Chen, Z., Clarke, M., Gorst, S. L., . . . Shang, H. (2025). Uptake of Core Outcome Sets (COS) in China.. Journal of evidence-based medicine, e70066. doi:10.1111/jebm.70066

DOI
10.1111/jebm.70066
Journal article

Continuity of outcome assessment throughout the lifecycle of surgical research: mapping core outcome domains measured in early phase and late phase studies.

Hoffmann, C., Sewart, E., Dodd, S., Gorst, S. L., Blazeby, J. M., Avery, K. N. L., . . . Macefield, R. C. (2025). Continuity of outcome assessment throughout the lifecycle of surgical research: mapping core outcome domains measured in early phase and late phase studies.. BMC surgery, 25(1), 473. doi:10.1186/s12893-025-03209-9

DOI
10.1186/s12893-025-03209-9
Journal article

P109 Development of a universal core outcome set for cystic fibrosis (COS-CF): protocol and systematic review

Evans, B. C., Calthorpe, R. J., Smyth, A. R., Downey, D., Hughes, C., Davies, G., . . . Goodchild, N. (2025). P109 Development of a universal core outcome set for cystic fibrosis (COS-CF): protocol and systematic review. Journal of Cystic Fibrosis, 24, S101. doi:10.1016/j.jcf.2025.03.127

DOI
10.1016/j.jcf.2025.03.127
Journal article

Development status of core outcome sets in China: a protocol

Zhang, M., Zhang, C., Pang, B., Gorst, S., Williamson, P., & Zhang, J. (2025). Development status of core outcome sets in China: a protocol. F1000Research, 14, 206. doi:10.12688/f1000research.159399.1

DOI
10.12688/f1000research.159399.1
Journal article

2024

Core Outcome Sets for Research and Core Outcome Sets for Routine Care – Do They Overlap?’

Kearney, A., Gorst, S., Williamson, P., & Dodd, S. (2024). Core Outcome Sets for Research and Core Outcome Sets for Routine Care – Do They Overlap?’. Poster session presented at the meeting of HTAi 2024. Seville.

Poster

Developing a core outcome set for the health outcomes for children and adults with congenital oesophageal atresia and/or tracheo-oesophageal fistula: OCELOT task group study protocol.

Ducey, J., Lansdale, N., Gorst, S., Bray, L., Teunissen, N., Cullis, P., . . . Thursfield, R. (2024). Developing a core outcome set for the health outcomes for children and adults with congenital oesophageal atresia and/or tracheo-oesophageal fistula: OCELOT task group study protocol.. BMJ paediatrics open, 8(1), e002262. doi:10.1136/bmjpo-2023-002262

DOI
10.1136/bmjpo-2023-002262
Journal article

2023

Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study.

Gorst, S. L., Seylanova, N., Dodd, S. R., Harman, N. L., O'Hara, M., Terwee, C. B., . . . PC-COS study group. (2023). Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition: an international Delphi consensus study.. The Lancet. Respiratory medicine, S2213-2600(23)00370-3. doi:10.1016/s2213-2600(23)00370-3

DOI
10.1016/s2213-2600(23)00370-3
Journal article

A Core Outcome Measurement Set (COMS) for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Adults: An International Delphi Consensus Study

DOI
10.2139/ssrn.4317875
Preprint

2022

Comparison of published core outcome sets with outcomes recommended in regulatory guidance from the US Food and Drug Administration and European Medicines Agency: cross sectional analysis.

Saldanha, I. J., Dodd, S., Fish, R., Gorst, S. L., Hall, D. A., Jacobsen, P., . . . Williamson, P. R. (2022). Comparison of published core outcome sets with outcomes recommended in regulatory guidance from the US Food and Drug Administration and European Medicines Agency: cross sectional analysis.. BMJ medicine, 1(1), e000233. doi:10.1136/bmjmed-2022-000233

DOI
10.1136/bmjmed-2022-000233
Journal article

I AM NOT FIXED;' A QUALITATIVE STUDY EXPLORING THE VIEWS ABOUT RESPIRATORY CARE OF PEOPLE BORN WITH OA/TOF

Bray, L., Gray, V., Cullis, P., Gorst, S., Faulkner, J., & Thursfield, R. M. (2022). I AM NOT FIXED;' A QUALITATIVE STUDY EXPLORING THE VIEWS ABOUT RESPIRATORY CARE OF PEOPLE BORN WITH OA/TOF. In THORAX Vol. 77 (pp. A126-A127). doi:10.1136/thorax-2022-BTSabstracts.220

DOI
10.1136/thorax-2022-BTSabstracts.220
Conference Paper

IDENTIFYING A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS RESEARCH - THE FOUNDATION FOR SARCOIDOSIS RESEARCH - SARCOIDOSIS CLINICAL OUTCOMES TASKFORCE (SCOUT)

Harman, N. L., Gorst, S. L., Williamson, P. R., Barnathan, E. S., Baughman, R. P., Judson, M. A., . . . Culver, D. A. (2022). IDENTIFYING A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS RESEARCH - THE FOUNDATION FOR SARCOIDOSIS RESEARCH - SARCOIDOSIS CLINICAL OUTCOMES TASKFORCE (SCOUT). SARCOIDOSIS VASCULITIS AND DIFFUSE LUNG DISEASES, 39(3). doi:10.36141/svdld.v39i3.12319

DOI
10.36141/svdld.v39i3.12319
Journal article

A core outcome set for post-COVID-19 condition in adults for use in clinical practice and research: an international Delphi consensus study

Munblit, D., Nicholson, T., Akrami, A., Apfelbacher, C., Chen, J., De Groote, W., . . . Williamson, P. R. (2022). A core outcome set for post-COVID-19 condition in adults for use in clinical practice and research: an international Delphi consensus study. LANCET RESPIRATORY MEDICINE, 10(7), 715-724. doi:10.1016/S2213-2600(22)00169-2

DOI
10.1016/S2213-2600(22)00169-2
Journal article

Patient and public involvement in designing, delivering and disseminating core outcome set (COS) studies, what does it look like? – An animation

Barrington, H. J., Gorst, S. L., Horobin, A., Morris, C., Morris, D., Smith, M., . . . Young, B. (n.d.). Patient and public involvement in designing, delivering and disseminating core outcome set (COS) studies, what does it look like? – An animation. In This project was funded by the University of Liverpool, Faculty of Health and Life Sciences Wellcome Trust Public Engagement Grants Scheme 2020 - 2021. doi:10.17638/datacat.liverpool.ac.uk/1640

DOI
10.17638/datacat.liverpool.ac.uk/1640
Dataset

2021

SCOUT - SARCOIDOSIS OUTCOMES TASKFORCE. A SYSTEMATIC REVIEW OF OUTCOMES TO INFORM THE DEVELOPMENT OF A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS

Harman, N. L., Gorst, S. L., Williamson, P. R., Barnathan, E. S., Baughman, R. P., Judson, M. A., . . . Culver, D. A. (2021). SCOUT - SARCOIDOSIS OUTCOMES TASKFORCE. A SYSTEMATIC REVIEW OF OUTCOMES TO INFORM THE DEVELOPMENT OF A CORE OUTCOME SET FOR PULMONARY SARCOIDOSIS. SARCOIDOSIS VASCULITIS AND DIFFUSE LUNG DISEASES, 38(3). doi:10.36141/svdld.v38i3.10737

DOI
10.36141/svdld.v38i3.10737
Journal article

A review of the Cochrane COVID-19 Study Register reveals inconsistency in the choice and measurement of SARS-CoV-2 infection outcomes in prevention trials

Dodd, S., Gorst, S., Avery, K., Harman, N., Macefield, R., Williamson, P., . . . COS-COVID-P Steering Committee. (2021). A review of the Cochrane COVID-19 Study Register reveals inconsistency in the choice and measurement of SARS-CoV-2 infection outcomes in prevention trials. doi:10.12688/f1000research.52491.1

DOI
10.12688/f1000research.52491.1
Journal article

2020

Assessing the relevance and uptake of core outcome sets (an agreed minimum collection of outcomes to measure in research studies) in Cochrane systematic reviews: a review

Williamson, P. R., de Ávila Oliveira, R., Clarke, M., Gorst, S. L., Hughes, K., Kirkham, J. J., . . . Schmitt, J. (2020). Assessing the relevance and uptake of core outcome sets (an agreed minimum collection of outcomes to measure in research studies) in Cochrane systematic reviews: a review. BMJ open, 10(9). doi:10.1136/bmjopen-2019-036562

DOI
10.1136/bmjopen-2019-036562
Journal article

Methods used in the selection of instruments for outcomes included in core outcome sets have improved since the publication of the COSMIN/ COMET guideline

Gorst, S. L., Prinsen, C. A. C., Salcher-Konrad, M., Matvienko-Sikar, K., Williamson, P. R., & Terwee, C. B. (2020). Methods used in the selection of instruments for outcomes included in core outcome sets have improved since the publication of the COSMIN/ COMET guideline. JOURNAL OF CLINICAL EPIDEMIOLOGY, 125, 64-75. doi:10.1016/j.jclinepi.2020.05.021

DOI
10.1016/j.jclinepi.2020.05.021
Journal article

PNS190 PATIENT-REPORTED OUTCOME MEASURES IN CORE OUTCOME SETS: A CROSS-SECTIONAL STUDY BASED ON THE COMET DATABASE

Ciani, O., Salcher-Konrad, M., Meregaglia, M., Smith, K., Gorst, S., Fattore, G., & Williamson, P. (2020). PNS190 PATIENT-REPORTED OUTCOME MEASURES IN CORE OUTCOME SETS: A CROSS-SECTIONAL STUDY BASED ON THE COMET DATABASE. Value in Health, 23, S319. doi:10.1016/j.jval.2020.04.1185

DOI
10.1016/j.jval.2020.04.1185
Journal article

PATIENT-REPORTED OUTCOME MEASURES IN CORE OUTCOME SETS: A CROSS-SECTIONAL STUDY BASED ON THE COMET DATABASE

Ciani, O., Salcher-Konrad, M., Meregaglia, M., Smith, K., Gorst, S., Fattore, G., & Williamson, P. (2020). PATIENT-REPORTED OUTCOME MEASURES IN CORE OUTCOME SETS: A CROSS-SECTIONAL STUDY BASED ON THE COMET DATABASE. In VALUE IN HEALTH Vol. 23 (pp. S319). Retrieved from https://www.webofscience.com/

Conference Paper

2019

Agreeing outcomes that matter to patients - co-production of an animation to explain core outcome sets

Bagley, H., Gorst, S., Humphreys, R., Craven, R., Vial, C., Williamson, P. R., . . . Gargon, E. (2019). Agreeing outcomes that matter to patients - co-production of an animation to explain core outcome sets. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/

Conference Paper

New methods for an update to a systematic review of core outcome sets for research

Gargon, E., Gorst, S., Norman, C., Leeflang, M., Neveol, A., & Williamson, P. (2019). New methods for an update to a systematic review of core outcome sets for research. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/

Conference Paper

2018

Choosing important health outcomes for comparative effectiveness research: An updated systematic review and involvement of low and middle income countries

Davis, K., Gorst, S. L., Harman, N., Smith, V., Gargon, E., Altman, D. G., . . . Williamson, P. R. (2018). Choosing important health outcomes for comparative effectiveness research: An updated systematic review and involvement of low and middle income countries. PLOS ONE, 13(2). doi:10.1371/journal.pone.0190695

DOI
10.1371/journal.pone.0190695
Journal article

2017

The COMET Handbook: version 1.0

Williamson, P., Altman, D. G., Bagley, H., Barnes, K. L., Blazeby, J. M., Brookes, S. T., . . . Young, B. (2017). The COMET Handbook: version 1.0. Trials, 18(Suppl 3), 50 pages. doi:10.1186/s13063-017-1978-4

DOI
10.1186/s13063-017-1978-4
Journal article

Priority setting for core outcome set development

Gorst, S., Clark, M., & Williamson, P. R. (2017). Priority setting for core outcome set development. In TRIALS Vol. 18. Retrieved from https://www.webofscience.com/

Conference Paper

2016

Core Outcome Set–STAndards for Reporting: The COS-STAR Statement

Kirkham, J. J., Gorst, S., Altman, D. G., Blazeby, J. M., Clarke, M., Devane, D., . . . Williamson, P. R. (2016). Core Outcome Set–STAndards for Reporting: The COS-STAR Statement. PLoS Medicine, 13(10). doi:10.1371/journal.pmed.1002148

DOI
10.1371/journal.pmed.1002148
Journal article

Improving the relevance and consistency of outcomes in comparative effectiveness research

Tunis, S. R., Clarke, M., Gorst, S. L., Gargon, E., Blazeby, J. M., Altman, D. G., & Williamson, P. R. (2016). Improving the relevance and consistency of outcomes in comparative effectiveness research. JOURNAL OF COMPARATIVE EFFECTIVENESS RESEARCH, 5(2), 193-205. doi:10.2217/cer-2015-0007

DOI
10.2217/cer-2015-0007
Journal article

"It's sort of a lifeline": Chronic obstructive pulmonary disease patients' experiences of home telehealth.

Gorst, S. L., Coates, E., & Armitage, C. J. (2016). "It's sort of a lifeline": Chronic obstructive pulmonary disease patients' experiences of home telehealth.. Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 35(1), 60-68. doi:10.1037/hea0000246

DOI
10.1037/hea0000246
Journal article

Choosing Important Health Outcomes for Comparative Effectiveness Research: An Updated Review and User Survey

Gorst, S. L., Gargon, E., Clarke, M., Blazeby, J. M., Altman, D. G., & Williamson, P. R. (2016). Choosing Important Health Outcomes for Comparative Effectiveness Research: An Updated Review and User Survey. PLOS ONE, 11(1). doi:10.1371/journal.pone.0146444

DOI
10.1371/journal.pone.0146444
Journal article

Core outcome sets (COS) and the core outcome measures in effectiveness trials (COMET) initiative: patient participation in COS development

Williamson, P., Gargon, E., Gorst, S., Altman, D., Blazeby, J., Clarke, M., & Tunis, S. (2016). Core outcome sets (COS) and the core outcome measures in effectiveness trials (COMET) initiative: patient participation in COS development. In QUALITY OF LIFE RESEARCH Vol. 25 (pp. 68). Retrieved from https://www.webofscience.com/

Conference Paper

2015

Choosing important health outcomes for comparative effectiveness research: an updated review and user survey

Gorst, S. L., Gargon, E., & Williamson, P. R. (2015). Choosing important health outcomes for comparative effectiveness research: an updated review and user survey. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S3-P8

DOI
10.1186/1745-6215-16-S3-P8
Conference Paper

The core outcome measures in effectiveness trials (COMET) initiative: five years on

Williamson, P., Altman, D., Blazeby, J., Clarke, M., Gargon, E., Gorst, S., & Tunis, S. (2015). The core outcome measures in effectiveness trials (COMET) initiative: five years on. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S2-P69

DOI
10.1186/1745-6215-16-S2-P69
Conference Paper

2014

Home telehealth uptake and continued use among heart failure and chronic obstructive pulmonary disease patients: a systematic review.

Gorst, S. L., Armitage, C. J., Brownsell, S., & Hawley, M. S. (2014). Home telehealth uptake and continued use among heart failure and chronic obstructive pulmonary disease patients: a systematic review.. Annals of behavioral medicine : a publication of the Society of Behavioral Medicine, 48(3), 323-336. doi:10.1007/s12160-014-9607-x

DOI
10.1007/s12160-014-9607-x
Journal article

Does telehealth promote self-care? A qualitative study examining the experience of older people using telehealth for long-term condition management

Taylor, J., Oguntuase, O., Gorst, S., Coates, E., & Armitage, C. J. (2014). Does telehealth promote self-care? A qualitative study examining the experience of older people using telehealth for long-term condition management. International Journal of Integrated Care, 14(8). doi:10.5334/ijic.1834

DOI
10.5334/ijic.1834
Journal article

2013

Exploring patient beliefs and perceptions about sustained use of telehealth

Gorst, S. L., Armitage, C., Hawley, M., & Coates, E. (2013). Exploring patient beliefs and perceptions about sustained use of telehealth. International Journal of Integrated Care, 13(7). doi:10.5334/ijic.1393

DOI
10.5334/ijic.1393
Journal article