Research outputs
2025
<i>Like walking through treacle</i>: the experience of fatigue for young people with interstitial lung disease
Gilbert, C., Bennett, K. M., Bush, A., & Brown, C. (2025). <i>Like walking through treacle</i>: the experience of fatigue for young people with interstitial lung disease. ORPHANET JOURNAL OF RARE DISEASES, 20(1). doi:10.1186/s13023-025-03607-5
An update on diagnosis and treatments of childhood interstitial lung diseases
Marczak, H., Krenke, K., Griese, M., Carlens, J., Seidl, E., Gilbert, C., . . . Nathan, N. (2025). An update on diagnosis and treatments of childhood interstitial lung diseases. BREATHE, 21(2). doi:10.1183/20734735.0004-2025
"We Could Hold Our Own Here at Home": Longitudinal Experience of COVID-19 Lockdowns in Parents With Children Affected With Interstitial Lung Disease
Gilbert, C., Bush, A., Bennett, K. M., & Brown, C. (2025). "We Could Hold Our Own Here at Home": Longitudinal Experience of COVID-19 Lockdowns in Parents With Children Affected With Interstitial Lung Disease. PEDIATRIC PULMONOLOGY, 60(1). doi:10.1002/ppul.27446
2024
Journeying Beyond Clinical Boundaries: Pragmatic patient-centric research into Childhood Interstitial Lung Disease (ChILD)
Gilbert, C. (2024, September 5). Journeying Beyond Clinical Boundaries: Pragmatic patient-centric research into Childhood Interstitial Lung Disease (ChILD).
“We could hold our own here at home”: Longitudinal experience of COVID-19 lockdowns in parents with children affected with Interstitial Lung Disease.
ERS statement on transition of care in childhood interstitial lung diseases
Pohunek, P., Manali, E., Vijverberg, S., Carlens, J., Chua, F., Epaud, R., . . . Bush, A. (2024). ERS statement on transition of care in childhood interstitial lung diseases. EUROPEAN RESPIRATORY JOURNAL, 64(2). doi:10.1183/13993003.02160-2023
Childhood Interstitial Lung Disease clinical research: A child-parent dyad survey on research preferences and acceptability
2023
Experiences of UK-based adult transition services for interstitial lung disease in childhood: "There's a lot less cushioning".
Gilbert, C., Bennett, K. M., Brown, C., & Bush, A. (2023). Experiences of UK-based adult transition services for interstitial lung disease in childhood: "There's a lot less cushioning".. Pediatric pulmonology. doi:10.1002/ppul.26423
Diagnostic workup of childhood interstitial lung disease
Nathan, N., Griese, M., Michel, K., Carlens, J., Gilbert, C., Emiralioglu, N., . . . Epaud, R. (2023). Diagnostic workup of childhood interstitial lung disease. EUROPEAN RESPIRATORY REVIEW, 32(167). doi:10.1183/16000617.0188-2022
2022
Experiences of UK-based adult transition services for Interstitial Lung Disease in childhood: “There’s a lot less cushioning”
Future Direction of Interstitial Lung Disease in childhood: A UK consultation
Gilbert, C. M., & Bennett, K. M. (2022). Future Direction of Interstitial Lung Disease in childhood: A UK consultation (https://doi.org/10.17605/OSF.IO/97Y2V).
2021
Pediatric interstitial lung disease
Bush, A., Gilbert, C., Gregory, J., Nicholson, A. G., Semple, T., Zampoli, M., & Pabary, R. (2021). Pediatric interstitial lung disease. Journal of the Pan African Thoracic Society, 2, 18-32. doi:10.25259/jpats_33_2020
2020
Interstitial lung disease in infancy
Bush, A., Gilbert, C., Gregory, J., Nicholson, A. G., Semple, T., & Pabary, R. (2020). Interstitial lung disease in infancy. EARLY HUMAN DEVELOPMENT, 150. doi:10.1016/j.earlhumdev.2020.105186
2018
The European research collaboration for Children's Interstitial Lung Disease (ChILDEU) ERS Clinical Research Collaboration
Cunningham, S., Gilbert, C., Schwerk, N., Bush, A., Clement, A., Deterding, R., . . . Boyd, J. (2018). The European research collaboration for Children's Interstitial Lung Disease (ChILDEU) ERS Clinical Research Collaboration. EUROPEAN RESPIRATORY JOURNAL, 52(6). doi:10.1183/13993003.01855-2018
Challenges facing parents/caregivers of children with interstitial lung disease (chILD): international survey
Boyd, J., Cunningham, S., Schwerk, N., Gilbert, C., Powell, P., & Schamberger, M. (2018). Challenges facing parents/caregivers of children with interstitial lung disease (chILD): international survey. In EUROPEAN RESPIRATORY JOURNAL Vol. 52. doi:10.1183/13993003.congress-2018.PA4680
2016
European idiopathic pulmonary fibrosis Patient Charter: a missed opportunity
Bush, A., Barbato, A., Clement, A., Cunningham, S., de Blic, J., Gilbert, C., . . . Griese, M. (2016). European idiopathic pulmonary fibrosis Patient Charter: a missed opportunity. EUROPEAN RESPIRATORY JOURNAL, 48(1), 282-283. doi:10.1183/13993003.00505-2016
2015
Childhood Interstitial Lung Disease: Family Experiences
Gilbert, C., Bush, A., & Cunningham, S. (2015). Childhood Interstitial Lung Disease: Family Experiences. PEDIATRIC PULMONOLOGY, 50(12), 1301-1303. doi:10.1002/ppul.23168
2014
P98 A Questionnaire Survey Of Parent Experiences And Perspectives In Children Diagnosed With Interstitial Lung Disease (ild)
Gilbert, C., Bush, A., & Cunningham, S. (2014). P98 A Questionnaire Survey Of Parent Experiences And Perspectives In Children Diagnosed With Interstitial Lung Disease (ild). Thorax, 69(Suppl 2), A120. doi:10.1136/thoraxjnl-2014-206260.239
2013
Research in progress: put the orphanage out of business
Bush, A., Anthony, G., Barbato, A., Cunningham, S., Clement, A., Epaud, R., . . . Griese, M. (2013). Research in progress: put the orphanage out of business. THORAX, 68(10), 971-973. doi:10.1136/thoraxjnl-2012-203201