Patient & Public Involvement - Fibromyalgia

Patients and researchers have come together five times so far and our last meeting was held in May 2023. Meetings are loosely structured and involve brief presentations from researchers on proposed studies as well as open-ended discussions.

Patients are invited to discuss their experience living with fibromyalgia - how it affects them physically, mentally, and socially - and what kind of research they would like to see in the future regarding fibromyalgia. Friends and family of patients are often invited to discuss how the condition has affected their loved one, and what they think research needs to address. 

These meetings help researchers better understand a patient's experience of living with fibromyalgia, which promotes better research and improves patients experience when taking part in research.