Global Neuro Research Coalition

The Global Neuro Research Coalition was formed by 24 expert neurologists and researchers from around the world. Together, they issued a call to the global neurology community to establish a coalition in which members could exchange ideas, share their latest research into the intersection of COVID-19 and neurology, and create open lines of communication between international colleagues and institutions, particularly in low- and middle-income countries.

Global Neuro Research Coalition map

Now comprising over 100 members from 34 countries, the Coalition has published numerous papers and is working closely with the WHO Neurology and COVID-19 Global Forum to answer the most pressing questions currently facing neurologists and their patients. In addition to its focus on low- and middle-income countries, the Coalition has placed an emphasis on harmonizing research networks and strategies, not only for COVID-19, but also for all future neurological research.

Mission Statement

"Advancing brain health research through interdisciplinary global collaboration“ 

The Global Neuro Research Coalition works to advance global brain health research through an international network of neurologists, neuroscientists, and allied specialties, with the ultimate aim of improving patient outcomes.  

The Coalition enables members of the interdisciplinary global neurology community to collaborate on translational research through identification of priorities and relevant evidence synthesis, harmonization of research tools, development of clinical guidance by establishing open lines of communication between international colleagues and institutions, particularly in low- and middle-income countries. 

Areas of Focus

Below are some of the key areas that the Coalition is currently focusing on, particularly in its work together with the WHO Neurology and COVID-19 Global Forum.

Acute Clinical Care

The Coalition is focused on understanding and improving the clinical management of patients affected by COVID-19 who develop acute neurological complications during the acute admission.

Essential Services

The Coalition is focused on investigating disruptions to essential neurological services around the world during the COVID-19 pandemic. By learning about mitigation strategies taken as well as gaps in service delivery, we aim to improve continuity of care for chronic neurological disease in crisis situations and to inform the strengthening of healthcare systems in the future.

Surveillance

The Coalition actively collaborated with the WHO to develop case report forms for neurologists and other clinicians to evaluate neurological symptoms that arise during or after acute COVID-19 infection. To read more, download the Post COVID-19 CRF.

Additionally, members of the Coalition have developed data collection forms for reporting neurological adverse events that occur after COVID-19 vaccinations. These forms can be used to track the appearance of specific neurological conditions after vaccinations and compare this with the typical prevalence of these conditions in the general public. To read preliminary evidence regarding this prevalence and access the data collection forms here.

Long-Term Follow-Up

The Coalition is actively investigating the long-term neurological effects of COVID-19 infection. It has published methodological guidelines for Neuro-COVID research (see our list of publications) and is working on a systematic review on this topic.

Vaccine Neurological Adverse Events

The Coalition has published two papers based on data compiled from the US Vaccine Adverse Events Reporting System, which analyzed the prevalence of neurological manifestations and specifically headaches after COVID-19 vaccinations. Please see Publications for more information.

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