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PPI Resources

This page contains a wide range of the most useful resources relating to PPI.

INVOLVE website: https://www.invo.org.uk

Includes online training for public reviewers, payment guidelines for PPI contributors, resources for people wanting to undertake PPI and a library of examples.

 

RDS North West:

Patient and public involvement how to: https://www.rds-nw.nihr.ac.uk/public-involvement/how-to-guide/

Public involvement: https://www.rds-nw.nihr.ac.uk/public-involvement/

Funds for PPI: https://www.rds-nw.nihr.ac.uk/public-involvement/fund/

 

McPin Foundation: Mental health specific resource: https://mcpin.org

Database of voluntary and community groups. Newsletter you can advertise PPI opportunities on.

 

PPI guidelines for surgical trials: https://www.invo.org.uk/posttypenews/pirrist-launches-ppi-guidance-for-chief-investigators-of-surgical-trials/

 

Piaff – The Public Involvement Impact Assessment Framework Guidance

http://piiaf.org.uk/documents/piiaf-guidance-jan14.pdf

 

Technology and PPI/engagement: https://www.patientlibrary.net/tempgen/175075.pdf

 

PENCLARHC have a lot of PPI resources: http://clahrc-peninsula.nihr.ac.uk/ppi-resources

 

Research methods handbook for PPI contributors (freely available and co-authored with service users and carers): https://www.manchesteropenhive.com/view/9781526136527/9781526136527.xml

 

ESRC public engagement guidance: https://esrc.ukri.org/public-engagement/public-engagement-guidance/

 

National co-ordinatoring centre for public engagement: https://www.publicengagement.ac.uk/about-engagement/current-policy-landscape/public-engagement-and-ref

 

Wellcome: Planning your public engagement: https://wellcome.ac.uk/funding/guidance/planning-your-public-engagement

 

A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials:

https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-016-0029-8 

 

Toolkit for evidence based co-design: https://www.kingsfund.org.uk/projects/ebcd 

 

University of Liverpool public engagement resources: https://www.liverpool.ac.uk/health-and-life-sciences/research-departments/funding/public-engagement/

 

Other UoL resources:

 

HLS: https://www.liverpool.ac.uk/health-and-life-sciences/public-engagement/

 

PPI and systematic reviews: https://www.liverpool.ac.uk/media/livacuk/iphs/researchgroups/20181120_LivEN_2_Knighting.pdf

 

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