Dr Lauren Hepworth PhD, MRes, BMedSci
Post Doctoral Orthoptic Research Fellow Primary Care & Mental Health
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Research
Impact of Visual Impairment after Stroke (IVIS) II: Measuring and exploring vision-related quality of life
Aim
To evaluate the Brain Injury-related Visual Impairment Impact Questionnaire (BIVI-IQ) for use in clinical practice and research for measuring impact on quality of life in individuals with post-stroke visual impairment.
Objectives
1) Assess the psychometric properties of BIVI-IQ
2) Assess the reliability of proxy reporting by family or carer using the BIVI-IQ;
3) Explore the impact of visual impairment on stroke survivors and correlate with formal measures of impact;
4) Develop and pilot test an ‘easy-read’ version of the BIVI-IQ;
5) Explore implementation of the BIVI-IQ into clinical practice.
Impact of Visual Impairment after Stroke (IVIS)
A research programme with four objectives:
• The first objective is, through systematic reviews and surveys, to identify different questionnaires available for people to tell us about their visual problems and identify different treatments available for eye movement problems.
• The second is to determine, in a clinical observation study, how frequently visual problems occur and what happens over time.
• The third is to identify the impact of issues faced by stroke survivors relating to visual problems.
• Finally, the fourth objective is to conduct trials of treatments for eye movement problems following stroke.
Vision Screening Assessment (VISA)
Development and validation of a vision screening assessment tool and training package for use by non-eye trained professionals.
Research Grants
Oxford Cognitive Screen - Visual Impairment adaptation
FIGHT FOR SIGHT (UK)
December 2022 - June 2024
Impact of visual impairment after stroke (IVIS-II): Measuring and exploring vision-related quality of life
STROKE ASSOCIATION (UK)
September 2019 - September 2024
Research Collaborations
Kathleen Vancleef
External: University of Durham
Improving diagnosis and rehabilitation of visual perception problems after stroke
Nele Demeyere
External: University of Oxford
Adjustment to the Oxford Cognitive Screen to make it accessible for individuals with visual impairment
Elizabeth Perkins
Internal
Impact of visual impairment after stroke
Phil Jimmieson
Internal
Development of Visual Impairment Screening Assessment (VISA) app
Jamie Kirkham
External: University of Manchester
Validation of Brain Injury associated Visual Impairment Impact Questionnaire
Claire Howard
External: Northern Care Alliance NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Martina Liptrot
External: St Helen's and Knowsley NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Erin Wilson
External: Wirral University Teaching Hospitals NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Jodie Daly
External: Epsom and St Helier University Hospitals NHS Trust
National multi-centre study addressing visual impairment following stroke
Anthony Evans
External: University Hospitals Birmingham NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Emma Gilboy
External: United Lincolnshire Hospitals NHS Trust
National multi-centre study addressing visual impairment following stroke
Jessica Francis
External: Sheffield Teaching Hospitals NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Helen Thouless
External: Aneurin Bevan University Health Board
National multi-centre study addressing visual impairment following stroke
Shegufta Farooq, Debbie Steel
External: Bradford Teaching Hospitals NHS Foundation Trust
National multi-centre study addressing visual impairment after stroke
Sharon Tawana
External: Buckinghamshire Healthcare NHS Trust
National multi-centre study addressing visual impairment following stroke
Catherine McKeown
External: The Royal Wolverhampton Hospitals NHS Trust
National multi-centre study addressing visual impairment following stroke
Jamie Spofforth
External: Imperial College Healthcare NHS Trust
National multi-centre study addressing visual impairment following stroke
Gillian Lamont
External: Belfast Health and Social Care Trust
National multi-centre study addressing visual impairment following stroke
Alex Green, Jo Quartley
External: Betsi Cadwaladr University Health Board
National multi-centre study addressing visual impairment following stroke
Caroline Dodridge
External: Oxford University Hospitals NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke
Henrietta Holmes-Smith
External: University Hospitals Dorset NHS Foundation Trust
National multi-centre study addressing visual impairment following stroke