Photo of Dr Lauren Hepworth

Dr Lauren Hepworth PhD, MRes, BMedSci

Post Doctoral Orthoptic Research Fellow Primary Care & Mental Health

Research

Impact of Visual Impairment after Stroke (IVIS) II: Measuring and exploring vision-related quality of life

Aim
To evaluate the Brain Injury-related Visual Impairment Impact Questionnaire (BIVI-IQ) for use in clinical practice and research for measuring impact on quality of life in individuals with post-stroke visual impairment.

Objectives
1) Assess the psychometric properties of BIVI-IQ
2) Assess the reliability of proxy reporting by family or carer using the BIVI-IQ;
3) Explore the impact of visual impairment on stroke survivors and correlate with formal measures of impact;
4) Develop and pilot test an ‘easy-read’ version of the BIVI-IQ;
5) Explore implementation of the BIVI-IQ into clinical practice.

Impact of Visual Impairment after Stroke (IVIS)

A research programme with four objectives:
• The first objective is, through systematic reviews and surveys, to identify different questionnaires available for people to tell us about their visual problems and identify different treatments available for eye movement problems.
• The second is to determine, in a clinical observation study, how frequently visual problems occur and what happens over time.
• The third is to identify the impact of issues faced by stroke survivors relating to visual problems.
• Finally, the fourth objective is to conduct trials of treatments for eye movement problems following stroke.

Vision Screening Assessment (VISA)

Development and validation of a vision screening assessment tool and training package for use by non-eye trained professionals.

Research Grants

Oxford Cognitive Screen - Visual Impairment adaptation

FIGHT FOR SIGHT (UK)

December 2022 - June 2024

Impact of visual impairment after stroke (IVIS-II): Measuring and exploring vision-related quality of life

STROKE ASSOCIATION (UK)

September 2019 - September 2024

Research Collaborations

Kathleen Vancleef

External: University of Durham

Improving diagnosis and rehabilitation of visual perception problems after stroke

Nele Demeyere

External: University of Oxford

Adjustment to the Oxford Cognitive Screen to make it accessible for individuals with visual impairment

Elizabeth Perkins

Internal

Impact of visual impairment after stroke

Phil Jimmieson

Internal

Development of Visual Impairment Screening Assessment (VISA) app

Jamie Kirkham

External: University of Manchester

Validation of Brain Injury associated Visual Impairment Impact Questionnaire

Claire Howard

External: Northern Care Alliance NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Martina Liptrot

External: St Helen's and Knowsley NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Erin Wilson

External: Wirral University Teaching Hospitals NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Jodie Daly

External: Epsom and St Helier University Hospitals NHS Trust

National multi-centre study addressing visual impairment following stroke

Anthony Evans

External: University Hospitals Birmingham NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Emma Gilboy

External: United Lincolnshire Hospitals NHS Trust

National multi-centre study addressing visual impairment following stroke

Jessica Francis

External: Sheffield Teaching Hospitals NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Helen Thouless

External: Aneurin Bevan University Health Board

National multi-centre study addressing visual impairment following stroke

Shegufta Farooq, Debbie Steel

External: Bradford Teaching Hospitals NHS Foundation Trust

National multi-centre study addressing visual impairment after stroke

Sharon Tawana

External: Buckinghamshire Healthcare NHS Trust

National multi-centre study addressing visual impairment following stroke

Catherine McKeown

External: The Royal Wolverhampton Hospitals NHS Trust

National multi-centre study addressing visual impairment following stroke

Jamie Spofforth

External: Imperial College Healthcare NHS Trust

National multi-centre study addressing visual impairment following stroke

Gillian Lamont

External: Belfast Health and Social Care Trust

National multi-centre study addressing visual impairment following stroke

Alex Green, Jo Quartley

External: Betsi Cadwaladr University Health Board

National multi-centre study addressing visual impairment following stroke

Caroline Dodridge

External: Oxford University Hospitals NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke

Henrietta Holmes-Smith

External: University Hospitals Dorset NHS Foundation Trust

National multi-centre study addressing visual impairment following stroke