We are very sorry that the meeting will not be able to go ahead as we were so excited to host such a special collaborative event, but we hope you understand the decision we have taken. We will look at new dates in the future with a view to possibly holding the meeting next year, June 23-25, 2021.
The programme will include fully integrated patient and parent led discussions on research and care priorities, classical scientific sessions, and working group sessions in which clinicians, scientists, patients, parents and charities discuss a forward strategy.
Over two days we will discuss the molecular pathophysiology of CNO and its nomenclature (vs CRMO, SAPHO and others), treatment decisions, research priorities and support, as well as address the need for improved patient and parent involvement in research and care decisions. Plus much more.